Objectives and priorities

What motivates us?

Objectives

Funding scientific research: We financially support global research efforts focused on understanding, preventing and treating rare neurodegenerative diseases.
Patient Care & Treatments: We assist patients with essential treatments, therapies, and medical equipment to improve their quality of life.
Equipping medical facilities: We finance modern diagnostic and treatment equipment for specialized care facilities.
Educational & Scientific Events: We organize events to stimulate knowledge exchange among international experts in neurodegeneration.
Financial & material support for patients: We provide financial assistance to ease medical costs and improve the well-being of patients and families.
Public awareness & advocacy: We run campaigns to educate and advocate for better policies and inclusion.
Fundraising Initiatives: We engage donors and organize events to support research funding and patient support programs.

Provides funding and partnerships to stimulate research into rare neurodegenerative diseases.
Promotes innovative research and multidisciplinary collaboration.
Accelerate the development of effective treatments for ataxia, Alzheimer's, Creutzfeldt-Jakob and other conditions.
Invest in advanced neurological technologies and therapies.
Provides comprehensive patient and caregiver support, education, and resources.
Advocate for improved health policies and increased access to treatments.