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Get involved

Your support helps us advance research, care, and hope.

Join the mission

There are many meaningful ways you can support our fight against rare neurodegenerative diseases. Whether it's donating, sponsoring, volunteering at events, or participating in awareness campaigns, your involvement directly contributes to improving patient care, advancing essential research, and creating positive, lasting change.

Ways to get involved:

  • Make a donation – Support cutting-edge research and patient care.

  • Become a sponsor – Collaborate with us to fund impactful initiatives.

  • Volunteer – Participate in our events and advocacy efforts.

  • Raise awareness – Spread the message and educate your community.

Fill out the form below to learn more about how you can make a difference.

Support Groups

Contact us

For more information, partnerships or support opportunities, please contact us by filling out the form below.

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